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研究生: 薛文媛
Hsueh, Wen-Yuan
論文名稱: 以「家庭為中心」介入方案於腦中風患者參與之成效
The effect of family-centered approach on participation for persons with stroke
指導教授: 吳亭芳
Wu, Ting-Fang
學位類別: 碩士
Master
系所名稱: 復健諮商研究所
Graduate Institute of Rehabilitation Counseling
論文出版年: 2019
畢業學年度: 107
語文別: 中文
論文頁數: 111
中文關鍵詞: 腦中風參與以家庭為中心照顧者憂鬱
英文關鍵詞: stroke, participation, family-centered, caregiver, depression
DOI URL: http://doi.org/10.6345/THE.NTNU.GRC.001.2019.C01
論文種類: 學術論文
相關次數: 點閱:260下載:13
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  • 近年來,由於醫學知識與技術的提升,腦中風患者的致死率大幅下降,但仍有許多患者生活無法獨立。隨著國際健康功能與障礙分類系統(ICF)的提出,相關專業開始著重患者參與的議題。在提升腦中風患者參與的介入方式中,大多僅著重於患者本身,甚少將家庭成員納入介入策略中。本研究期待透過以家庭為中心的介入提升腦中風患者社交與社區參與。
    本研究採準實驗設計,透過照顧者參與意願之有無將研究參與者分為實驗組與控制組,探討介入前後以及介入後一個月的追蹤成效。實驗組以家庭為中心的介入,控制組則以個案為中心介入。兩組介入時間皆為每周一至兩次90-120分鐘課程,課程總計八次。資料分析以描述性統計、Wilcoxin排序和檢定、Wilcoxin符號等級檢定研究參與者在社區、社交參與和憂鬱程度的改變。
    本研究基於資源方便性,在臺北市某教學醫院收案,參與者分成實驗組九位與對照組八位。介入前兩組在年齡(p=0.007)與社區參與多樣性(p=0.037)上具有顯著差異。介入後兩組在各依變項皆無統計上顯著差異,然發現實驗組的憂鬱程度降低、社交參與多樣性提升、社交/社區參與中想改變的程度提升以及社區參與困難程度有下降的趨勢。兩組在追蹤時,所有依變項於統計皆未達顯著差異,但在社區參與多樣性與參與頻率有上升的趨勢。
    本研究在統計上未能顯現以家庭為中心的介入優於以個案為中心的介入,但在追蹤時的依變項變化情形有正向發展的趨勢,建議未來可以探究較多樣本、較長介入以及提早介入的成效。

    Due to the progress of medical technology, the mortality has reduced significantly in stroke patients recently. However, there were still lots of stroke patients cannot live independently in community. health professions started focusing on the issues of patients’ participation since the International Classification of Functioning, Disability, and Health (ICF) issued. Most of the interventions which enhancing the participation of stroke patients focused on the patients themselves, rare of them focused on their family. This study intended to enhancing social and community participation in stroke patients through family-centered approach.
    This study used a quasi-experimental pre-posttest research design. Participants were divided into experimental and control groups based on the caregivers’ willingness to joined the intervention or not. Nine were in the experimental group and eight were in the control group. Patients in both groups received one or two 90-120-minute treatment sessions a week, with a total of eight sessions. Patients in experimental group received family-centered approach in which both the patients and their family members attended the treatment sessions, and those in control group received client-centered intervention in which only the stroke patients attended the treatment sessions. Data was analyzed by descriptive statistics, Wilcoxin rank sum test, and Wilcoxin signed ranks test.
    There was no statistically significant difference between the experimental and control groups in all variables, although the trends of the depression reducing, the diversity of social participation increasing, the desire to change in social/community participation and the difficulty of community participation decreasing in the experimental group were found. In the one-month follow up, there was still no statistically significant difference between the experimental and control groups in all variables, although there was an increasing trend in community participation diversity and participation frequency.
    This study does not indicate that family-centered approach is better than client-centered approach. However, there are positive trends in community participation diversity and participation frequency. Further studies could recruit more participants and implement intervention early in the onset and longer intervention duration.

    致謝 I 中文摘要 II ABSTRACT III 目錄 V 圖目錄 VII 表目錄 VIII 第一章 緒論 1 第一節 研究背景與動機 1 第二節 研究目的與研究問題 3 第三節 名詞解釋 5 第二章 文獻探討 9 第一節 腦中風患者之參與 9 第二節 針對參與的復健介入方式 13 第三節 以家庭為中心之介入方案 18 第三章 研究方法 21 第一節 研究設計 21 第二節 研究對象 24 第三節 研究工具 26 第四節 研究介入方案 30 第五節 研究流程 34 第六節 資料分析 36 第四章 研究結果 37 第一節 研究對象之基本特性 39 第二節 施行團體介入之成效 43 第三節 以家庭為中心與以個案為中心之組間成效比較 59 第四節 研究者觀察紀錄 65 第五章 研究討論 69 第一節 研究結果摘要 69 第二節 以家庭為中心介入方案之成效討論 71 第三節 研究限制與建議 81 第四節 實務上的應用 84 參考文獻 85 附錄一、社會參與量表PARTICIPATION MEASUREMENT-3 DOMAINS, 4 DIMENSIONS(PM-3D4D) 92 附錄二、蒙特利爾認知測驗-台灣版(MONTREAL COGNITIVE ASSESSMENT-MOCA TAIWAN VERSION) 98 附錄三、蒙特利爾認知評估(台灣版)-使用及計分指引 99 附錄四、以個案為中心團體介入課程設計 106 附錄五、以家庭為中心團體介入課程設計 108 附錄六、臺北醫學大學暨附屬醫院聯合人體研究倫理委員會通過證明函 110

    李曼曲(2016): 以家庭為中心的早期療育發展沿革。國教新知,4,46-54。
    初麗娟、高尚仁 (2005): 壓力知覺對負面心理健康影響: 靜坐經驗, 情緒智能調節效果之探討。中華心理學刊,2,157-179。
    陳心怡(譯) (2000):貝克憂鬱量表指導手冊中文版(第二版)。臺北: 中國行為科學。
    蔡佳芬、傅中玲(譯)(2010): 蒙特利爾認知量表(Nasreddine, Z. S., Phillips, N. A., Bédirian, V., Charbonneau, S., Whitehead, V., Collin, I., ... & Chertkow, H.著:Montreal Cognitive Assessment, MoCA)。取自https://www.mocatest.org/wp-content/uploads/2015/tests-instructions/MoCA-Test-Taiwan.pdf(原著出版於1996)。
    衛生福利部(2016): 民國105年死因統計年報電子書。臺北:衛生福利部統計處。
    衛生福利部(2018): 105年身心障礙者生活狀況及需求調查報告。臺北:衛生福利部統計處。
    廖建彰、李采娟、林瑞雄、宋鴻樟(2006): 2000 年台灣腦中風發生率與盛行率的城鄉差異。臺灣公共衛生雜誌,25(3),223-230。
    廖華芳(2015):身心障礙鑑定功能量表8.0版操作手冊。臺北:社團法人台灣國際健康功能與身心障礙分類系統(ICF)研究學會。
    廖華芳、嚴嘉楓、黃靄雯、劉燦宏、紀彣宙(2015): 身心障礙鑑定功能量表之發展與應用。社區發展季刊,150,76-97。
    廖華芳、嚴嘉楓、黃靄雯、劉燦宏、張本聖、吳亭芳、... & 張光華(2013): 身心障礙鑑定功能量表之運用。臺灣醫學,3,317-331。
    盧孟良、車先蕙、張尚文、沈武典(2002): 中文版貝克憂鬱量表第二版之信度和效度。臺灣精神醫學,4, 301-310。

    American Psychiatric Association(2017, January). What Is Depression? [Web massage] Retrieved from https://www.psychiatry.org/patients-families/depression/what-is-depression
    Andrenelli, E., Ippoliti, E., Coccia, M., Millevolte, M., Cicconi, B., Latini, L., ... & Capecci, M. (2015). Features and predictors of activity limitations and participation restriction 2 years after intensive rehabilitation following first-ever stroke. European Journal of Physical and RehabilitationMedicine, 51(5), 575-85.
    Andreou, E., Alexopoulos, E. C., Lionis, C., Varvogli, L., Gnardellis, C., Chrousos, G. P., & Darviri, C. (2011). Perceived stress scale: reliability and validity study in Greece. International Journal of Environmental Research and Public Health, 8(8), 3287-3298.
    Barnsley, L., McCluskey, A., & Middleton, S. (2012). What people say about travelling outdoors after their stroke: a qualitative study. Australian Occupational Therapy Journal, 59(1), 71-78.
    Blömer, A. M. V., Van Mierlo, M. L., Visser-Meily, J. M., Van Heugten, C. M., & Post, M. W. (2015). Does the frequency of participation change after stroke and is this change associated with the subjective experience of participation?. Archives of Physical Medicine and Rehabilitation, 96(3), 456-463.
    Brown, M., Dijkers, M. P., Gordon, W. A., Ashman, T., Charatz, H., & Cheng, Z. (2004). Participation objective, participation subjective: A measure of participation combining outsider and insider perspectives. Journal of Head Trauma Rehabilitation, 19(6), 459-481.
    Chan, D. Y., Chan, C. C., & Au, D. K. (2006). Motor relearning programme for stroke patients: A randomized controlled trial. Clinical Rehabilitation, 20(3), 191-200.
    Chang, F. H. (2017). Measuring participation of rehabilitation patients: Test-retest reliability and mode of administration concordance of the Participation Measure–3 Domains, 4 Dimensions (PM-3D4D). Archives of Physical Medicine and Rehabilitation, 98(8), 1622-1627.
    Chang, F. H., & Coster, W. J. (2014). Conceptualizing the construct of participation in adults with disabilities. Archives of Physical Medicine and Rehabilitation, 95(9), 1791-1798.
    Chang, F. H., Coster, W. J., & Helfrich, C. A. (2013). Community participation measures for people with disabilities: A systematic review of content from an international classification of functioning, disability and health perspective. Archives of Physical Medicine andRehabilitation, 94(4), 771-781.
    Chang, F. H., Chang, K. H., Liou, T. H., & Whiteneck, G. G. (2017). Validation of the Participation Measure–3 Domains, 4 Dimensions (PM-3D4D). Archives of Physical Medicine and Rehabilitation, 98(12), 2498-2506.
    Chang, F. H., Liou, T. H., Ni, P., Chang, K. H., & Lai, C. H. (2017). Development of the Participation Measure–3 Domains, 4 Dimensions (PM-3D4D): A new outcome measure for rehabilitation. Archives ofPhysical Medicine and Rehabilitation, 98(2), 286-294.
    Chau, J. P., Thompson, D. R., Twinn, S., Chang, A. M., & Woo, J. (2009). Determinants of participation restriction among community dwelling stroke survivors: a path analysis. BMC Neurology, 9(1), 49.
    Chiu, D., Peterson, L., Elkind, M. S., Rosand, J., Gerber, L. M., & Silverstein, M. D. (2010). Comparison of outcomes after intracerebral hemorrhage and ischemic stroke. Journal of Stroke and Cerebrovascular Diseases, 19(3), 225-229.
    Creasy, K. R., Lutz, B. J., Young, M. E., & Stacciarini, J. M. R. (2015). Clinical Implications of Family‐Centered Care in StrokeRehabilitation. Rehabilitation Nursing, 40(6), 349-359.
    D'alisa, S., Baudo, S., Mauro, A., & Miscio, G. (2005). How does stroke restrict participation in long‐term post‐stroke survivors?. Acta Neurologica Scandinavica, 112(3), 157-162.
    de Graaf, J. A., van Mierlo, M. L., Post, M. W., Achterberg, W. P., Kappelle, L. J., & Visser-Meily, J. M. (2018). Long-term restrictions in participation in stroke survivors under and over 70 years of age. Disability and Rehabilitation, 40(6), 637-645.
    Dehghan Nayeri, N., Mohammadi, S., Pedram Razi, S., & Kazemnejad, A. (2014). Investigating the effects of a family-centered care program on stroke patients’ adherence to their therapeutic regimens. Contemporary Nurse, 47(1-2), 88-96.
    Desrosiers, J., Demers, L., Robichaud, L., Vincent, C., Belleville, S., & Ska, B. (2008). Short-term changes in and predictors of participation of older adults after stroke following acute care or rehabilitation. Neurorehabilitation and Neural Repair, 22(3), 288-297.
    Draper, B., Bowring, G., Thompson, C., Van Heyst, J., Conroy, P., & Thompson, J. (2007). Stress in caregivers of aphasic stroke patients: a randomized controlled trial. Clinical Rehabilitation, 21(2), 122-130.
    EMBASE, C. (2015). Screening for cognitive impairment after stroke: A systematic review of psychometric properties and clinical utility. Journal of Rehabilitation Medicine, 47(3), 193-203.
    Flansbjer, U. B., Miller, M., Downham, D., & Lexell, J. (2008). Progressive resistance training after stroke: effects on muscle strength, muscle tone, gait performance and perceived participation. Journal of Rehabilitation Medicine, 40(1), 42-48.
    Gadidi, V., Katz-Leurer, M., Carmeli, E., & Bornstein, N. M. (2011). Long-term outcome poststroke: predictors of activity limitation and participation restriction. Archives of Physical Medicine and Rehabilitation, 92(11), 1802-1808.
    Graven, C., Brock, K., Hill, K., Ames, D., Cotton, S., & Joubert, L. (2011). From rehabilitation to recovery: protocol for a randomised controlled trial evaluating a goal-based intervention to reduce depression and facilitate participation post-stroke. BMC Neurology, 11(1), 73.
    Graven, C., Brock, K., Hill, K. D., Cotton, S., & Joubert, L. (2016). First year after stroke: An integrated approach focusing on participation goals aiming to reduce depressive symptoms. Stroke, 47(11), 2820-2827.
    Grigorovich, A., Forde, S., Levinson, D., Bastawrous, M., Cheung, A. M., & Cameron, J. I. (2015). Restricted participation in stroke caregivers: who is at risk?. Archives of Physical Medicine and Rehabilitation, 96(7), 1284-1290.
    Han, Y., Liu, Y., Zhang, X., Tam, W., Mao, J., & Lopez, V. (2017). Chinese family caregivers of stroke survivors: Determinants of caregiving burden within the first six months. Journal of Clinical Nursing.26(23-24), 4558-4566.
    Hankey, G. J., Jamrozik, K., Broadhurst, R. J., Forbes, S., & Anderson, C. S. (2002). Long-term disability after first-ever stroke and related prognostic factors in the Perth Community Stroke Study, 1989–1990. Stroke, 33(4), 1034-1040.
    Hartman-Maeir, A., Soroker, N., Ring, H., Avni, N., & Katz, N. (2007). Activities, participation and satisfaction one-year post stroke. Disability and Rehabilitation, 29(7), 559-566.
    Hemmingsson, H., & Jonsson, H. (2005). An occupational perspective on the concept of participation in the International Classification of Functioning, Disability and Health—some critical remarks. American Journal of Occupational Therapy, 59(5), 569-576.

    Hu, H. H., Chu, F. L., Chiang, B. N., Lan, C., Sheng, W. Y., Lo, Y. K., ... & Luk, Y. O. (1989). Prevalence of stroke in Taiwan. Stroke, 20(7), 858-863.
    Institute for Patient- and Family-Centered Care. (2010). What is patient- and family centered care? Retrieved from http:// ipfcc.org/faq.html.
    Jaracz, K., Grabowska-Fudala, B., Górna, K., Jaracz, J., Moczko, J., & Kozubski, W. (2015). Burden in caregivers of long-term stroke survivors: Prevalence and determinants at 6 months and 5 years after stroke. Patient Education and Counseling, 98(8), 1011-1016.
    Johnston, M. V., Goverover, Y., & Dijkers, M. (2005). Community activities and individuals’ satisfaction with them: quality of life in the first year after traumatic brain injury. Archives of Physical Medicine and Rehabilitation, 86(4), 735-745.
    Katz-Leurer, M., Carmeli, E., & Shochina, M. (2003). The effect of early aerobic training on independence six months post stroke. Clinical Rehabilitation, 17(7), 735-741.
    Lesage, F. X., Berjot, S., & Deschamps, F. (2012). Psychometric properties of the French versions of the Perceived Stress Scale. International Journal of Occupational Medicine and Environmental Health, 25(2), 178-184.
    Lund, A., Michelet, M., Kjeken, I., Wyller, T. B., & Sveen, U. (2012). Development of a person-centred lifestyle intervention for older adults following a stroke or transient ischaemic attack. Scandinavian Journal of Occupational Therapy, 19(2), 140-149.
    Lund, A., Michelet, M., Sandvik, L., Wyller, T. B., & Sveen, U. (2012). A lifestyle intervention as supplement to a physical activity programme in rehabilitation after stroke: A randomized controlled trial. Clinical Rehabilitation, 26(6), 502-512.
    Marsden, D., Quinn, R., Pond, N., Golledge, R., Neilson, C., White, J., ... & Pollack, M. (2010). A multidisciplinary group programme in rural settings for community-dwelling chronic stroke survivors and their carers: A pilot randomized controlled trial. Clinical Rehabilitation, 24(4), 328-341.
    Mayo, N. E., Anderson, S., Barclay, R., Cameron, J. I., Desrosiers, J., Eng, J. J., ... & Richards, C. L. (2015). Getting on with the rest of your life following stroke: a randomized trial of a complex intervention aimed at enhancing life participation post stroke. Clinical Rehabilitation, 29(12), 1198-1211.
    Mehndiratta, M. M., Khan, M., Mehndiratta, P., & Wasay, M. (2014). Stroke in Asia: geographical variations and temporal trends. Journal of Neurology, Neurosurgery and Psychiatry, 85(12), 1308-1312.
    Micaela Silva, S., Carlos Ferrari Corrêa, J., da Silva Mello, T., Rodrigues Ferreira, R., Fernanda da Costa Silva, P., & Ishida Corrêa, F. (2016). Impact of depression following a stroke on the participation component of the International Classification of Functioning, Disability and Health. Disability and Rehabilitation, 38(18), 1830-1835.
    Mimura, C., & Griffiths, P. (2004). A Japanese version of the perceived stress scale: translation and preliminary test. International Journal of Nursing Studies, 41(4), 379-385.
    Mozaffarian, D., Benjamin, E. J., Go, A. S., Arnett, D. K., Blaha, M. J., Cushman, M., ... & Howard, V. J. (2016). Executive summary: heart disease and stroke statistics—2016 update: A report from the American Heart Association. Circulation, 133(4), 447-454.
    Nasreddine, Z. S., Phillips, N. A., Bédirian, V., Charbonneau, S., Whitehead, V., Collin, I., ... & Chertkow, H. (2005). The Montreal Cognitive Assessment, MoCA: a brief screening tool for mild cognitive impairment. Journal of The American Geriatrics Society, 53(4), 695-699.
    Obembe, A. O., & Eng, J. J. (2016). Rehabilitation interventions for improving social participation after stroke: A systematic review and meta-analysis. Neurorehabilitation and Neural Repair, 30(4), 384-392.
    Ostwald, S. K., Bernal, M. P., Cron, S. G., & Godwin, K. M. (2009). Stress experienced by stroke survivors and spousal caregivers during the first year after discharge from inpatient rehabilitation. Topics in Stroke Rehabilitation, 16(2), 93-104.
    Pinquart, M., & Sörensen, S. (2006). Gender differences in caregiver stressors, social resources, and health: An updated meta-analysis. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 61(1), P33-P45.
    Rogers, C. R.(1966). Client-centered therapy. Washington, DC: American Psychological Association.
    Salter, K., Jutai, J. W., Teasell, R., Foley, N. C., Bitensky, J., & Bayley, M. (2005). Issues for selection of outcome measures in stroke rehabilitation: ICF Participation. Disability and Rehabilitation, 27(9), 507-528.
    Scott, C. L., Phillips, L. H., Johnston, M., Whyte, M. M., & MacLeod, M. J. (2012). Emotion processing and social participation following stroke: Study protocol. BMC Neurology, 12(1), 56.
    Sever, P. S., Dahlöf, B., Poulter, N. R., Wedel, H., Beevers, G., Caulfield, M., ... & Mehlsen, J. (2003). Prevention of coronary and stroke events with atorvastatin in hypertensive patients who have average or lower-than-average cholesterol concentrations, in the Anglo-Scandinavian Cardiac Outcomes Trial—Lipid Lowering Arm (ASCOT-LLA): a multicentre randomised controlled trial. Lancet, 361(9364),1149-1158.
    Tse, T., Douglas, J., Lentin, P., & Carey, L. (2013). Measuring participation after stroke: a review of frequently used tools. Archives of Physical Medicine and Rehabilitation, 94(1), 177-192.
    Van Heugten, C. M., Walton, L., & Hentschel, U. (2015). Can we forget the Mini-Mental State Examination? A systematic review of the validity of cognitive screening instruments within one month after stroke. Clinical Rehabilitation, 29(7), 694-704.
    Verberne, D. P., Post, M. W., Köhler, S., Carey, L. M., Visser-Meily, J. M., & van Heugten, C. M. (2018). Course of social participation in the first 2 years after stroke and its associations with demographic and stroke-related factors. Neurorehabilitation and Neural repair, 32(9), 821-833.
    Visser-Meily, A., Post, M., Gorter, J. W., Berlekom, S. B. V., Van Den Bos, T., & Lindeman, E. (2006). Rehabilitation of stroke patients needs a family-centred approach. Disability and Rehabilitation, 28(24), 1557-1561.
    Wang, T. C., Tsai, A. C., Wang, J. Y., Lin, Y. T., Lin, K. L., Chen, J. J., ... & Lin, T. C. (2015). Caregiver-mediated intervention can improve physical functional recovery of patients with chronic stroke: a randomized controlled trial. Neurorehabilitation and Neural repair, 29(1), 3-12.
    Warner, G., Packer, T., Villeneuve, M., Audulv, A., & Versnel, J. (2015). A systematic review of the effectiveness of stroke self-management programs for improving function and participation outcomes: self-management programs for stroke survivors. Disability and Rehabilitation, 37(23), 2141-2163.
    Woodman, P., Riazi, A., Pereira, C., & Jones, F. (2014). Social participation post stroke: a meta-ethnographic review of the experiences and views of community-dwelling stroke survivors. Disability and Rehabilitation, 36(24), 2031-2043.
    World Health Organization. (2001). International Classification of Functioning, Disability and Health: ICF. World Health Organization.
    World Health Organisation. (2002). Towards a common language for funtioning, disability and health. The international classification of functioning, disability and health. Geneva, Switzerland: World Health Organisation.

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