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研究生: 邱一
Chiu, Yi
論文名稱: 提早學習獨自面對人生──思覺失調症患者女兒的成長故事
Learning to Face Life Alone at an Early Age: Growth Story of a Schizophrenic Patient's Daughter
指導教授: 田秀蘭
Tien, Hsiu-Lan Shelley
口試委員: 金樹人
Jin, Shuh-Ren
林繼偉
Lin, Chi-Wei
田秀蘭
Tien, Hsiu-Lan Shelley
口試日期: 2021/12/23
學位類別: 碩士
Master
系所名稱: 教育心理與輔導學系碩士在職專班
Department of Educational Psychology and Counseling_Continuing Education Master's Program of Educational Psychology and Counseling
論文出版年: 2021
畢業學年度: 110
語文別: 中文
論文頁數: 105
中文關鍵詞: 自我敘說成長經驗思覺失調症精神疾患家屬
英文關鍵詞: self-narrative, growth experience, schizophrenia, relatives of people with mental illness
研究方法: 敘事分析
DOI URL: http://doi.org/10.6345/NTNU202200214
論文種類: 學術論文
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  • 本研究為質性取向的自我敘說研究,以自我敘說文本為主、過往自陳文字紀錄為輔,將研究者的身為思覺失調症患者女兒的成長經驗再次呈現。
    研究程序先以第一人稱的研究參與者視角切入,專注於面對母親罹病的成長經驗,覺察經驗中的感受,並將敘述謄寫成為文本,將記憶中的經驗再現。而後以第三人稱的研究者視角進行文本分析,解構與統整資料,梳理脈絡。最後重構經驗,為家人罹病賦予新的意義,並探討「唯一照顧者」成長經驗造成的影響。
    研究結果主要有三:一、研究參與者在回顧過往經驗的爬梳中,認為「母親罹患思覺失調症」、「遇到高中班導」、「成為教師」為其成長經驗中對自己人生影響最大的三個事件。二、面對家人罹患思覺失調症,「女兒」與「照顧者」的角色協調,以及「過好自己的生活」與「照顧生病的母親」的任務兼顧,對於研究參與者而言都有很大的困難度;但此心理調適經驗使其發現:母親罹患思覺失調症對其而言的意義是學習「抉擇」與「釋懷」的考驗。三、作為思覺失調症病患的唯一照顧者,此成長經驗使研究參與者提早學習到「人生本孤獨」的哲理。
    上述研究結果,望能供醫療、社扶與教育單位參考精障家庭中青少年的處境,以期使該族群得到需要的協助。

    This research is a qualitative oriented self-narrative study, with self-narrative texts as the mainstay, and past self-reporting text records as a supplement, re-presenting the researcher's growth experience as the daughter of a schizophrenic patient.
    The research procedure is first approached from the perspective of the first-person, focusing on the self-experience of facing the mother's illness, perceiving the feelings through the experience, transcribing into text, and allowing the experience to reappear. The text analysis is then carried out from the perspective of the third-person researcher, deconstructs and integrates the data, and then sorts out the context. Finally, the research reconstructs the experience, giving it new meaning, and discusses the impact of such experience as the "only caregiver."
    There are three main results of the study: 1. The research participant believes that "mother suffering from schizophrenia," "encountering high school's home room teacher," and "becoming a teacher" are the three events that have the greatest impact in life. 2. In the face of family members suffering from schizophrenia, taking both the roles of "daughter and caregiver," and the tasks of "living one's own life and caring for sick mother," are extremely difficult to the participant. However, the experience has allowed the participant to realize that the meaning of her mother's illness is a test of learning to choose and let go. 3. As the "only caregiver" for patients with schizophrenia, the growth experience makes the participant learn early that "life is lonely."
    Above research hopes to provide better understanding for medical, family and children institutions to give the right help.

    第一章 緒論 1 第一節 研究動機 2 第二節 研究目的與研究問題 3 第三節 名詞釋義 4 第二章 文獻探討 7 第一節 自我敘說相關文獻 7 第二節 成長經驗相關研究 10 第三節 思覺失調症相關文獻 16 第四節 思覺失調症患者家屬相關研究 22 第三章 研究方法 27 第一節 研究取向 27 第二節 研究參與者 28 第三節 研究工具 29 第四節 研究實施程序 30 第五節 研究資料分析 33 第六節 研究倫理 34 第七節 資料的可信賴度 35 第四章 結果──提早學習獨自面對人生 37 第一節 「我是哪裡人?」──自我認同混淆 38 第二節 根深蒂固的依賴──母親是全世界 39 第三節 老天爺的玩笑──母親罹患思覺失調症 41 第四節 品嚐孤獨──國小後期曾一個人住 43 第五節 震撼教育──國中時母親自殺(未果) 46 第六節 青春狂飆期──與祖母同住 48 第七節 再次相依為命──母親回到身邊 49 第八節 獨自承擔──高中時將母親送醫治療 50 第九節 逐漸靠自己過活──成為家庭唯一收入者 54 第十節 在黑夜中發現燈塔──遇到高中班導 59 第十一節 邁入人生的新階段──成為教師 63 第十二節 打造自己的家──舊屋翻新 67 第五章 發現與討論──人生本孤獨 71 第一節 思覺失調症患者女兒的成長故事 72 第二節 母親罹患思覺失調症代表的意義 74 第三節 「唯一照顧者」成長經驗的影響 79 第四節 反思與建議 83 參考文獻 89 中文部份 89 英文部份 97 附錄 101 附錄1 自我敘說提問 參考資料一 101 附錄2 自我敘說提問 參考資料二 102 附錄3 自我敘說提問 參考資料三 104

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