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研究生: 江家榮
Chiang Chia-Jung
論文名稱: 一位發展遲緩幼兒母親的經驗
A Mother's Experience of Having a Developmentally Delayed Child
指導教授: 王天苗
學位類別: 碩士
Master
系所名稱: 特殊教育學系
Department of Special Education
論文出版年: 2000
畢業學年度: 88
語文別: 中文
論文頁數: 117
中文關鍵詞: 母親發展遲緩幼兒
英文關鍵詞: mother, developmentally delayed child
論文種類: 學術論文
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  • 我的研究主要是利用質性研究方法,並且,運用了參與觀察與訪談方式蒐集研究資料,藉以探究一位發展遲緩幼兒母親的生活經驗。
    我的研究對象------美惠,原本是個名符其實的職業婦女,後來因為小女兒很難照料,於是,她就辭掉工作而成為全職家庭主婦。由於,婚後的美惠一直就與婆婆的關係處得不好,再加上先生不甚體諒美惠的立場,所以,一次婆媳間的細故事件發生後,美惠與先生的婚姻關係幾乎瀕臨破裂。然而,離婚事件之後,才得知小女兒為發展遲緩兒一事,除了讓美惠當下傷心欲絕、日後四處尋找女兒所需資源以外,還促使美惠深刻地自我覺醒,因而,她慢慢地對其自我家庭角色加以重新定位。同時,美惠的這一番改變,間接地影響她所維持的家人與婚姻關係有所改善。
    透過美惠的經驗,我們發現美惠以及其他家庭成員的生活,確實都因『家有障礙兒』一事而受到不同程度的影響,並且也經歷一段調適與資源摸索或尋找的歷程。然而,原本家庭婚姻不和諧的情形,卻在美惠調適與接納小女兒為發展遲緩幼兒的同時,她也對自己過去的所作所為有所深刻的體悟,進而讓她的家庭與婚姻生活轉變成為較為理想的狀態。

    In this study, a mother who had a young child with developmental delays was used as an example to illustrate the experience of having a special needs child in the family. Qualitative research design was selected in this case study in order to explore the detailed phenomena in the real word of the mother. Participant observation and in-depth interviewing were the main strategies used for data collection.
    Because of having difficulties in taking care of a youngest daughter, Bay-bay, the mother decided to quit the full-time job. Once the child was diagnosed as having developmental delays, the mother experienced grief and sorrow, but soon bravely looked for medical and educational resources for the child. Even though the delayed child had brought heavy care taking works for the mother, as the mother had reported, however she had successfully coped with the crisis and improved the relationships with her husband and mother-in-law.
    In this case, it is obviously that having a special needs child could truly effect the life of the mother. The mother had experienced great trauma, psychological struggling, and resources hunting, however, the fact of having a special child had allowed her to find ways to solve the existing problems in her marriage and family life.
    Keywords: mother, developmentally delayed child

    中文摘要……………………………………………………………I 英文摘要………………………………………………..…………II 目錄…………………………………………………….…………III 第一章 緒論 第一節 研究動機……………………………………………...1 第二節 過去的研究…………………………………………...5 第三節 研究主題的確立…………………………………….14 第二章 研究方法 第一節 研究取向……………….……………………………16 第二節 研究對象…………………………………………….19 第三節 研究場域………………….…………………………23 第四節 進入現場…………………………..………………...27 第五節 研究者角色….………………………………………30 第六節 資料的蒐集……………….…………………………34 第七節 資料的整理與分析……………..…………………...38 第八節 研究的信賴度………….……………………………41 第三章 研究發現 第一節 夫妻、婆媳原有衝突……………………………….44 第二節 未知發展遲緩時的教養困境……………………….55 第三節 尋找答案與資源…………………………………….64 第四節 接納事實後的家人關係…………………………….75 第四章 研究後的省思 第一節 心得………………………………………………….90 第二節 反省………………………………………………100 參考文獻………………………………………………………103 附錄一…………………………………………………………...115 附錄二…………………………………………………………...116 附錄三…………………………………………………………...117

    參考文獻
    中文部分
    王天苗(民79):智障幼兒與母親自由遊戲情境互動行為之研究。特殊教育研究學刊,6,131-151。
    王天苗(民82):心智障礙兒童家庭需要之研究。特殊教育學刊,9,73-90。
    王天苗(民87):障礙者家庭研究與實務。身心障礙研討會會議實錄。台北市:國立台灣師範大學特殊教育系印行。
    王文科(民83):教育研究法。台北:五南。
    王琳華(民87):曾有不孕症婦女孕期的生活經驗。國防醫學院護理研究所碩士論文(未出版)。
    何善欣(民89):我愛小麻煩。台北:平安。
    呂偉白(民89):中國時報二月二十八日38版家庭生活副刊親子版。
    宋維村、劉可屏(民81):自閉症兒童父母之婚姻關係。家庭心理衛生國際研討會報告論文。
    李紹榮、蔡文輝 合譯(民73):婚姻與家庭。台北:巨流。
    李雅玲、陳月枝、林國信(民82):癌症兒童家庭主要照顧者對支持系統感受。護理雜誌季刊,40,3。
    吳武典、王天苗、Retish(民87):殘障兒童與家庭交互影響之研究。特殊教育研究學刊,3,1-28.
    吳芝儀、李奉儒 合譯(民84):質的評鑑與研究。台北:桂冠。
    林貴美(民81):國小啟智班親職教育實驗研究報告。國立台北師範學院特殊教育系。
    周治蕙(民82):養育一歲至兩歲唐氏症嬰幼兒母親之調適行為。國立台灣大學護理研究所碩士論文(未出版)。
    周寧馨、連明剛(民79):幼兒特殊教育需求與成效之探討。特殊教育季刊,37,27-31。
    胡幼慧(民):質性研究----理論、法論及本土女性研究實例。台北:巨流。
    徐宗國 譯(民86):質性研究概論。台北:巨流。
    高清淑(民89):研究學方法及其在教育研究上的應用。質的研究方法。中正大學教育學研究所主編,麗文文化公司。
    許素彬(民84):學障兒童與非學障兒童家庭調適力與親和力之比較研究。教育資料與研究,5,59-65。
    陳明聰、王天苗(民86):台北市國小啟智班學生父母參與之研究。特殊教育研究學刊,15,215-235.
    陳秋玫(民82):早產兒母親社會支持系統對母親角色適應之研究。中國文化大學兒童福利研究所碩士論文(未出版)。
    陳美琇(民80):智能不足與正常兒童組母子互動中母親口語及兒童反應行為之研究。國立台灣師範大學特殊教育研究所碩士論文(未出版)。
    陳昱儒(民85):工作與家庭----女性生活場域中的成就觀。國立台灣大學心理學研究所碩士論文(未出版)。
    陳俞君、朱曉慧(民84):早期介入計畫對發展遲緩幼兒與母親互動行為之影響。高雄醫學科學雜誌,11,697-707
    郭倩茹(民82):智能發展障礙幼兒家庭動力之研究。彰化師範大學特殊教育研究所碩士論文(未出版)。
    張芳蘭(民80):育幼期父母親生活調適及其影響因素之研究。成功大學社會科學學報,4,215-240。
    張秋珍(民82):視覺障礙兒童家庭動力之研究。彰化師範大學特殊教育研究所碩士論文(未出版)。
    張淑燕(民86):國中啟智班學生家庭需求之研究。國立彰化師範大學特殊教育研究所碩士論文(未出版)。
    黃璉華(民82):生育先天性缺陷兒對婦女的影響。行政院國家科學委員會專題計畫。
    黃璉華(民84):生育先天性缺陷兒對家庭的影響。中華公共衛生雜誌,14,299-313。
    黃瑞琴(民88):質的教育研究方法。台北:心理出版社。
    孫世嘉(民85):母親主導行為類型對唐氏症兒童反應行為及溝通能力之影響。國科會研究計畫報告。
    楊寶亞(民82):障礙幼兒母親傳統觀念教養與教養態度之探討。國立台灣師範大學特殊教育研究所碩士論文(未出版)。
    劉可屏(民71):智能不足兒童家庭研究。輔仁大學社會工作系碩士論文(未出版)。
    劉仲冬(民85):民族誌研究法及實例。質性研究----理論、方法及本土女性研究實例。台北:巨流。
    劉明麗(民86):台北市國小智障學童父母心理調適歷程之研究。國立台灣師範大學特殊教育研究所碩士論文(未出版)。
    劉城晃(民86):國小啟智班親職教育方案的發展與成效研究。國立高雄師範大學特殊教育研究所碩士論文(未出版)。
    蔣欣欣、喻永生(民81):唐氏症嬰幼兒家庭初知真相後之調適歷程。行政院衛生署81年度委託研究計畫;保健工作研究報告。
    萬育維、吳肖琪(民86):『發展遲緩兒童早期療育之研究—轉介中心鑑定中心合作模式之規劃』期末報告(未出版)。
    英文部分
    Ainge, D., Colvin, G., & Baker, S. (1998). Analysis of perceptions of parents who have children with intellectual disabilities : Implications for service providers. Education and Training in Mental Retardation and Developmental Disabilities, 33(4), 331-341.
    Apter, D. S. (1994). From dream to reality : A participant`s view of the implementation of part H pf P. L. 99-457. Journal of Early Intervention, 1994, 18(2), 131-140.
    Bailey, D. B., Skinner, D., Rodriguez, P., Gut, D., & Correa, V. (1999). Awareness, use, and satisfaction with services for Latino parents of young children with disabilities. Exceptional Children, 65(3), 367-381.
    Barnard, K., Bee, H., & Hammond, M. (1984). Developmental changes in maternal interactions with term and preterm infants. Infant Behavior and Development, 7, 101-113.
    Belsky, J. (1984). The determinants of parenting: A process model. Child Development, 55, 83-69.
    Berger, J. & Cunningham, C. C. (1981). The development of eye contact between mothers and normal versus Down’s Syndrome infants. Development Psychology, 17, 678-689.
    Bronfenbrenner, U. (1986). Ecology of the family as a context for human development: Research perspectives. Developmental Psychology, 22(6), 723-742.
    Brooks-Gunn, J. & Lewis, M. (1984). Maternal responsiveness in interactions with handicapped infants. Child Development, 55, 782-793.
    Clark, G. N. & Seifer, R. (1985). Assessment of parents` interactions with their developmentally-delayed infants. Infant Mental Health Journal, 6, 214-225.
    Cunningham, C. E., Rueler, E., Blackwell, J., & Deck, J. (1981). Behavioral and linguistic developments in the interactions of normal and retarded children. Child Development, 52, 62-70.
    Denzin, N. K. & Lincoln, Y. S. (1994). Handbook of qualitative research. Thousand Oaks: Sage.
    Dyson, L. (1991). Fathers and mothers of school-age children with developmental disabilities: Parental stress, family functioning, and social support. American Journal on Mental Retardation, 102(3) 267-279.
    Eheart, B. K. (1982). Mother-Child interactions with nonretarded and mentally retarded preschoolers. American Journal of Mental Deficiency, 87, 20-25.
    Erickson, M. F. & Kurz-Riemer, K. (1997). Infants, toddlers, and families: A framework for support and intervention. New york.
    Esdaile, S. A. (1995). A play-focused intervention involving mothers of preschool. The American Journal of Occupation, 50(2), 113-123.
    Fescher, M. A. (1987). Mother-child interaction in preverbal children with down syndrome. Journal of speech and Hearing Disorders, 52, 179-190.
    Field, T. (1983). High-risk infants “have less fun” during early interventions. Topics in Early Childhood Special Education, 3, 77-87.
    Field, T. (1993). Enhanncing parent sensitiviity. In N. J. Anastasiow & S. Hare, At-risk infants: Interventions, families and research. Maryland: Paul H. Brookes.
    Girolametto, L., Verbey, M., & Tannock, R. (1994). Improving joint engagement in parent-child interaction: An intervention study. Journal of Early Intervention, 18(2), 155-167.
    Hanzilik, J. R. & Stevenson, M. B. (1986). Interaction of mothers with their infants who are mentally retarded, retarded with cerebral palsy, or nonretarded. American Journal of Mental Deficiency, 90, 513-520.
    Hess, R. D. & Shipman, V. C. (1965). Early education and socialization of cognitive modes on children. Children Development, 36, 869-886.
    Huntington, G. S., Simeonsson, R. J., Bailey, D. B., & Comfort, M. (1987). Handicapped child characteristics and maternal involvement. Journal of Reproduction and Infant Psychology, 5, 105-118.
    Kelly, J. F. (1982). Effects of intervention on caregiver-infant interaction when the infant is handicapped. Journal of the Division for Early Childhood, 5, 53-63.
    Kogan, K. L., Wimberger, J. C., & Bobbitt, R. A. (1969). Analysis of mother-child interaction in young mental retardeds. Child Development, 40, 799-812.
    Landry, S. H. & Chapieski, M. L. (1989). Joint attention and infant toy exploration: Effects of Down syndrome and prematurity. Child Development, 60, 103-118.
    Leifer, J. S. & Lewis, M. (1983). Maternal speech to normal and handicapped children: A look at question-asking behavior. Infant Behavior and Development, 6, 175-187.
    Lincoln, Y. S. & Guba, E. G. (1985). Naturalistic Inquiry. Newbury Park: Sage.
    Lojkasek, M., Coldberg, S., Marcovitch, S., & MacGregor, D. (1990). Influences on maternal responsiveness to developmentally delayed preschoolers. Journal of Early Intervention, 14(3), 260-273.
    Mahoney, G., Boyce, G., Fewell, R. R.,Spiker, D., & Wheeden, C. A. (1998). The relationship of parent-child interaction to effectiveness of early intervention services for at-risk children and children with disabilities. Topics in Early Childhood Special Education, 18(1), 5-17.
    McCollum, J. A., & Yates, T. J. (1994). Dyad as focus, triad as means : A family-centered approach to supporting parent-child interactions. Young Children, 6(4), 54-63.
    Mahoney, G. J. & Powell, A. (1988). Modifying parent-child interaction: Enhancing the development of handicapped children. Journal of Special Education, 22, 82-96.
    Meyers, S. A. (1999). Mothering in context: Ecological determinats of parent behavior. Merrill-Palmer Quarterly, 45(2), 332-357.
    Moseley, M. J. (1990). Mother-child interaction with preschool language-delayed children: Structuring conversations. Journal of Communication Disorder, 23, 187-203.
    Osofsky, J. D. & Connors, D. (1978). Mother-infant interaction : An integrative view of a complex system. In J. D. Osofsky(ed.), Handbook of infant development.
    Patton, M. Q. (1990). The challenge of being a profession. Evaluation practice, 11, 1, 45-51.
    Reyes-Blanes, M. E., Correa, V. I., & Bailey, D. B. (1999). Topics in Early Childhood Special Education, 19(1), 54-63.
    Richard, N. B. (1986). Interaction between mothers and infants with Down syndrome: Infant characteristics. Topics in Early Childhood Special Education, 6(3), 54-71.
    Schachter, F. F. (1979). Everyday mothers talk to toddlers: Early intervention. New York: Academic.
    Seifer, R., Clark, G. N.& Sameroff, A. J. (1991). Positive effects of interaction coaching on infants with developmental disabilities and their mothers. American Journal of Mental Retardation, 96(1), 1-11.
    Slater, M. A. (1986). Modification of mother-child interaction processes in families with children at-risk for mental retardation. American Journal of Mental Deficiency, 91(3), 257-267.
    Stoneman, Z., Brody, G., & Abbott, D. (1983). In-home observation of young Down Syndrome children with their mothers and fathers. American Journal of Mental Deficiency, 87, 591-600.
    Tannock, R. (1988). Maters’ directiveness in their interactions with their Down syndrome children and without Down syndrome. American Journal on Mental Retardation, 93, 154-165.
    Turnbull, A. P. & Turnbull, M. (1997). Families, professionals, and exceptionality: A special partnership(3rd ed.). Upper Saddle River, Nj: Merrill.
    Whitchurch, G. G. & Constantine, H. R. (1993). System theory. In P. G. Boss, W. J. LaRossa, W. R. Schumm, & S. K. Steinmetz(Eds.), Sourcebook of family theories and methods. New York: Plenum Press.
    Weistuch, L., Lewis, M. & Sullivan, M. W. (1991). Project profile : Use of a language interaction intervention in the preschools. Journal of Early Intervention, 15(3), 278-287.
    White, B. L. & Watts, J. C. (1973). Experience and environment.(vol. 1), Englewood Cliffs, NJ: Prentice-Hall.
    Yoder, L. J. & Farran, D. C. (1986). Mother-infant engagements in dyads with handicapped and nonhandicapped infants: A pilot study. Applied Research in Mental retardation, 7, 51-58.

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