研究生: |
錢鳳家 Chian, Feng-Jia |
---|---|
論文名稱: |
安寧療護中的靈性陪伴─以長照機構社會工作者為例 Spiritual care at the end of life in long-term care institutions: From social workers’ perspectives |
指導教授: |
游美貴
Yu, Mei-Kuei |
口試委員: |
張宏哲
Jhang, Hong-Jhe 李閏華 Li, Run-Hua 游美貴 Yu, Mei-Kuei |
口試日期: | 2022/05/03 |
學位類別: |
碩士 Master |
系所名稱: |
社會工作學研究所 Graduate Institute of Social Work |
論文出版年: | 2022 |
畢業學年度: | 110 |
語文別: | 中文 |
論文頁數: | 172 |
中文關鍵詞: | 長期照顧 、安寧療護 、靈性陪伴 |
英文關鍵詞: | long-term care, hospice care, spiritual care |
研究方法: | 深度訪談法 、 半結構式訪談法 |
DOI URL: | http://doi.org/10.6345/NTNU202200541 |
論文種類: | 學術論文 |
相關次數: | 點閱:132 下載:25 |
分享至: |
查詢本校圖書館目錄 查詢臺灣博碩士論文知識加值系統 勘誤回報 |
靈性陪伴是安寧療護的核心,然而在實務的執行上,容易不被專業所重視,影響住民與家屬,無法維護整體性的照顧品質。故此論文的研究目的,以住宿型的長照機構社會工作者的視角,探討長照機構執行安寧療護的過程,以及當中靈性陪伴的實務技術與經驗,並提出看法與建議,作為鞏固「以家屬和住民為中心」照顧策略之參考。本研究以大台北地區的六位住宿型長照機構社會工作者,為研究對象,年資皆達兩年以上,以深度訪談進行研究,其研究結果如下:
(一)安寧療護在長照機構的實施狀況
長照機構可作為安寧療護的實施場域,滿足住民與家屬的臨終照顧需求。安寧療護有四個階段的過程,其依序為宣導期、評估篩選期、決策期、醫療照顧期。
(二)社會工作者在安寧療護的角色功能
社會工作者在安寧療護的四階段中,有多種角色功能,例如資訊提供者、招集者、協調者、傾聽與陪伴支援者、資源連結者、轉譯者的角色。
(三) 安寧療護中靈性陪伴的實務技巧
運用同理心的陪伴與傾聽技巧,並透過機構和居家安寧團隊共同協作,輔導住民與家屬,完成疾病末期可行的目標並建立希望,緩解靈性困擾的不適與不安。
(四)安寧療護中靈性陪伴的經驗
靈性陪伴能產生互惠效應,使長照機構及社會工作者,展現優勢和自我成長的價值,但仍面臨制度、環境、缺乏靈性陪伴專業化的重視和資源不足等困境。
依上述研究結論,提出制度面上的建議,需強化長照機構工作人員對安寧療護的共識,並融入本土化的整體性照顧模式,提升靈性陪伴在專業上的重要性等。
關鍵字:長期照顧、安寧療護、靈性陪伴
Spiritual care, despite being a core domain of hospice care, is not likely to be taken seriously professionally in practice. This phenomenon may hinder residents and their families from maintaining holistic care quality. Therefore, the current study aims to explore, from the perspectives of social workers at residential long-term care institions, the process of hospice care implementation at these institions as well as the practical skills and experience of spiritual care involved therein. Further, views and recommendations are proposed as a reference for the reinforcement of the “resident- and family-centered” care strategy. In this study, six social workers serving at residential long-term care institions in the Greater Taipei area, all with two or more years of experience, were enrolled as the research subjects, and research was conducted through the in-depth interview approach. The results of this study are as follows:
(1) Status of hospice care implementation at long-term care institions
Long-term care institions may serve as sites for the implementation of hospice care to satisfy the end-of-life care needs of residents and their families. The process of hospice care involves four stages: the stages of advocacy, evaluation and screening, decision making, and healthcare, in order of time.
(2) Roles and functions of social workers in hospice care
Throughout the four stages of hospice care, social workers provide a variety of tasks, including information giver, organizer, coordinator, listening and companionship supporter, resource connection, and translator.
(3) Practical skills of spiritual care in hospice care
Empathic care and listening skills, as well as collaboration between institions and home-based hospice care teams, are used to counsel residents and their families, assist residents in achieving realistic goals and building hope in the terminal stage of illness, and relieve their discomfort and anxiety induced by spiritual distress.
(4) Experience of spiritual care in palliative care
Spiritual care can generate reciprocity effects, enabling long-term care institions and social workers to exhibit their strengths and the value of self-growth. Nevertheless, obstacles such as inadequacies of institutions, environments, attention to professionalization of spiritual care, and resources still confront them.
Based on the aforementioned research conclusions, this study propounds several institutional recommendations, which include the following: consensus on hospice care should be strengthened among the staff of long-term care institions; an indigenized holistic care model should be incorporated; and the professional significance of spiritual care should be enhanced.
Keywords:long-term care, hospice care, spiritual care
一、中文資料
大衛(David R, H.)(2019)。靈性評估:社會工作與心理健康領域之應用(初版)(邱晨馨譯)。高雄市:台灣百香果協會。(原著初版年:2015)
內政部統計處(2021)。人口數三段年齡組。檢自:https://statis.moi.gov.tw/micst/stmain.jsp?sys=220&ym=11000&ymt=11012&kind=21&type=1&funid=c0110201&cycle=41&outmode=0&compmode=0&outkind=1&fldlst=1111&cod00=1&rdm=bbrlNoqi
內政部統計月報(2020)。1.2-現住人口出生、死亡、結婚、離婚登記。檢自:https://ws.moi.gov.tw/001/Upload/400/relfile/0/4413/79c158fd-d51f-4061-b24b-fbcdb0fb92d9/month/month.html
內政部統計年報(2020)。05.年齡別死亡數--五齡。檢自:https://ws.moi.gov.tw/001/Upload/400/relfile/0/4405/48349492-6f8c-453b-a9d1-4a8f0593b979/year/year.html
王佑涵(2020)。正念老人照護療法對改善住宿式長照機構失能老人心理及靈性安適之成效(未出版之碩士論文)。私立馬偕醫學院,新北市。
王英偉(2010)。新安寧運動下的倫理思維。澄清醫護管理雜誌,6(1),4-11。
布蘭特(Brant, C.)(2005)。超個人心理治療【心理治療與靈性轉化的整合】(初版)(易之新)。台北市:心靈工坊文化。(原著初版年:1997)
田玫、薛夙君(2016)。長期照護緒論。長期照護(六版)(第一章,頁1-1—1-31)。臺中市:華格納企業。
行政院(2021)。長照2.0,照顧的長路更安心。檢自:https://www.ey.gov.tw/Page/5A8A0CB5B41DA11E/dd4675bb-b78d-4bd8-8be5-e3d6a6558d8d
李閏華(2013)。安寧療護社會工作。臺北市:洪葉文化。
李宗派(2015)。安寧緩和與臨終關懷—美國經驗。臺灣老人保健學刊,11(2),57-79。
李依臻(2017)。長期照護機構安寧療護服務模式之研究(未出版之博士論文)。國立暨南國際大學,南投縣。
李欣慈、鄭淑貞、黃川芳、吳郁梅、胡文郁(2015)。華人儒、釋、道文化觀點探討湍護理之家老年住民簽署自身預立醫療指示文件的現況與困境。安寧療護雜誌,20(2),154-164。doi: 10.6537/TJHPC.2015.20(2).5
李欣慈(2016)。以行動研究促進長照機構高齡住民及家屬參與預立醫療照護諮詢(未出版之博士論文)。國立台灣大學,臺北市。
行政院公報資訊網(2006)。全民健康保險費用支付標準。檢自:https://gazette.nat.gov.tw/EG_FileManager/eguploadpub/eg011238/ch08/type1/gov70/num1/Eg.htm
行政院(2015年11月3日)。長期照顧服務量能提升計畫(104~107年)核定本。檢自:https://www.ey.gov.tw/Upload/RelFile/26/730958/37bc9015-e3da-4ba8-9a98-cd8c5384b97a.pdf
呂雅惠、陳宜亨、陳美麗(2019)。靈性照護於台灣住宿型長期照護的落實。長期照護雜誌,23(3),231-244。doi:10.6317/LTC.201912_23(3).0006
呂欣怡、林碧珠(2017)。社區安寧照護未來發展。新台北護理期刊,19(2),1-5。doi: 10.6540/NTJN.2017.2.001
吳玲娟、田玫、薛夙君(2016)。機構住宿式照顧。長期照護(六版) (第七章,頁7-3—7-47)。臺中市:華格納企業。
吳啟程、張瓊云(2020)。主題分析在教育研究上的應用。特殊教育發展期刊,69,29-42。
邱泰源、陳榮基(2013)。安寧緩和醫療之倫理困境。安寧緩和醫療理論與實務(第四章,頁69-86)。臺北市:合記。
車文博(2003)。人本主義心理學。浙江:教育出版社。
佩吉特(Padgett, D. K. ) (2000)。質化研究與社會工作(一版) (王金永等譯)。臺北市:紅葉文化。(原著初版年:1998)。
林沄萱、劉淑惠、陳清惠(2008)。靈性護理之臨床運用。護理雜誌,55(3),69-74。
林育靖(2013)。安寧緩和醫療的團隊與挑戰。安寧緩和醫療理論與實務(第三章,頁69-86)。臺北市:合記。
林佳慧(2015)。靈性照顧對安老所老人生活適應之探討(未出版之碩士論文)。國立台灣大學,臺北市。
林蕙珠(2014)。走向死亡蔭谷-長照機構老人面臨終老的生命困境(未出版之碩士論文)。私立南華大學,嘉義縣。
林佳瑩、宋惠娟、范聖育、王淑貞、胡慧芳(2014)。預立醫療自主計畫對提升長期照護機構老人安寧療護、預立醫療指示知識及態度的成效初探。長庚護理,25(4),389-403。doi: 10.3966/102673012014122504002
林明慧(2018,10月)。臺灣長照機構善終服務之困境。2018世界安寧日-長照安寧國際研討會:臺灣安寧療護的模式初探,在華南銀行總行大樓會議中心舉辦,台北市。
林明慧(2021年,10月)。在榮民之家推展緩和照護-參考歐洲PACE計畫之步驟。110年榮民體系安寧緩和醫療全程照護網絡視訊國際研討會。
侯春梅、陳雅芳、黃勝堅、楊文理、蔡衣帆(2015)。醫院與長照機構推動社區安寧整合性服務。北市醫學雜誌,12,130-148。doi:10.6200/TCMJ.2015.12.SP.12
洪一文、陳純純、王英偉、謝至鎠、江淑莞、張志容…吳淑珍(2016)。長照機構執行安寧緩和照護介入之成效初探。安寧療護雜誌,21(3),245-257。doi: 10.6537/TJHPC.2016.21(3).1
凃心怡(2018)。【封面故事】2018世界安寧日給予尊重的生活品質你是重要的。檢自:https://www.hospice.org.tw/content/972
馬洛(Marlow, C.) (2001)。社會工作研究法(初版)(石志偉等譯)。臺北市:紅葉文化。(原著初版年:1992)。
秦龍 (1998)。馬斯洛與健康心理學。內蒙古:人民出版社。
高碧月(2018)。安寧療護在社區及長照機構的理念與執行。安寧緩和療護(二版)(第五章,頁97-103)。臺北市:華杏。
高以信(2018)。安寧倫理概論。安寧緩和療護(二版)(第六章,頁107-119)。臺北市:華杏。
翁瑞萱、徐愫萱、施至遠、黃勝堅(2015)。臺灣社區安寧居家療護之現在與未來。護理雜誌,62(2),18–24。
翁益強(2018,10月)。衛生福利部國民健康署整合性安寧全人照護培訓與推廣計畫:長期照護人員安寧照護培訓-推廣計畫三年期。2018世界安寧日-長照安寧國際研討會:臺灣安寧療護的模式初探,在華南銀行總行大樓會議中心舉辦,台北市。
根秀欽(2018)。悲傷關懷與心理陪伴。安寧緩和療護(二版)(第九章,頁193-224)。臺北市:華杏。
孫文榮(2018,10月)。機構安寧照護-台北市立聯和醫院經驗分享。2018世界安寧日-長照安寧國際研討會:臺灣安寧療護的模式初探,在華南銀行總行大樓會議中心舉辦,台北市。
國家教育研究院(2000)。雙語詞彙、學術名詞暨辭書資訊網。檢自:http://terms.naer.edu.tw/detail/1303460/
國家發展委員會(2020年8月)。中華民國人口推估(2020~2017年)。檢自:
https://pop-proj.ndc.gov.tw/upload/download/%E4%B8%AD%E8%8F%AF%E6%B0%91%E5%9C%8B%E4%BA%BA%E5%8F%A3%E6%8E%A8%E4%BC%B0(2020%E8%87%B32070%E5%B9%B4)%E5%A0%B1%E5%91%8A.pdf
康美雪(2016)。臺灣長期照護的靈性關懷:以臺北市至善老人安養護中心為例(未出版之碩士論文)。私立輔仁大學,新北市。
許禮安(2018)。安寧療護概論。安寧緩和療護(二版)(第一章,頁1-20)。臺北市:華杏。
許禮安(2018)。安寧緩和醫療條例。安寧緩和療護(二版)(第二章,頁23-58)。臺北市:華杏。
許禮安(2018)。末期病人的心理反應與靈性陪伴。安寧緩和療護(二版) (第八章,頁 151-190)。台北市:華杏。
許禮安(2018)。本土化的安寧療護。安寧緩和療護(二版) (第十九章,頁491-510)。台北市:華杏。
許馨文(2019)。長期照護機構推行安寧療護模式之成效探討-以台北市至善老人安養護中心為例(未出版之碩士論文)。國立台灣大學,臺北市。
張卉汝(2020)。人生最後一堂告別課從社工觀點談長期照顧機構安寧緩和服務(未出版之碩士論文)。國立暨南國際大學,南投縣。
張嘉秀、葉淑蕙(2014)。讓逝者適得其所-台灣長期照護機構推行安寧療護之現況與展望。長期照護雜誌,18(2),175-192
莊秀美(2008)。長期照顧相關課題芻議。長期照顧機構服務變遷發展之研究(第一章,頁3-24)。臺北市:松慧。
莊秀美(2008)。台灣長期照顧機構的轉型。長期照顧機構服務變遷發展之研究(第一章,頁73-86)。臺北市:松慧。
黃秀梅(2016)。台北市公立安養護機構照顧工作人員執行安寧照顧經驗分享(未出版之碩士論文)。國立台灣大學,臺北市。
黃佳慧(2019)。抉擇與臨終陪伴歷程:接受機構安寧長者之親屬陪伴照顧經驗之探討(未出版之碩士論文)。私立慈濟科技大學,花蓮市。
黃源協(2005)。社區長期照顧體系的建構。國家政策季刊,4(4),41-68。
黃慈心(2017)。長照服務新紀元~淺談長期照顧服務法。中華民國內膜異位症婦女協會會刊,24(1 & 2),16-17。
黃明源、林承霈(2019)。臨終之處與其影響因素之探究。安寧療護雜誌,23(3),254-266。
鈕文英(2016)。質性研究之意義與發展。質性研究方法與論文寫作(二版) (第一章,頁3-17)。臺北市:雙葉書廊。
鈕文英(2016)。質性研究支派典與類型。質性研究方法與論文寫作(二版) (第二章,頁26-95)。臺北市:雙葉書廊。
鈕文英(2016)。質性研究之倫理與文化議題。質性研究方法與論文寫作(二版) (第三章,頁103-143)。臺北市:雙葉書廊。
鈕文英(2016)。質性研究之品質指標與提升方法。質性研究方法與論文寫作(二版) (第七章,頁333-335)。臺北市:雙葉書廊。
葉玲玲(2011)。長期照護政策。長期照護(二版) (第二章,頁51-70)。臺北市:華杏。
楊迎晨(2019)。安寧緩和照護課程介入對長照機構工作人員安寧照護相關知識及照顧態度影響之探討(未出版之碩士論文)。國立台北護理健康大學,臺北市。
楊培珊(2005)。老人長期照護機構及社工專業的現況與展望。臺灣社會工作學刊,4,148-169。
趙可式(2009)。台灣安寧療護的發展與前瞻。護理雜誌,56(1),5-10。doi: 10.6224/JN.56.1.5
廖綠(2013)。護理之家住民不施行心肺復甦術現況簽屬/不簽屬影響因子之探討(未出版之碩士論文)。私立中臺科技大學,台中市。
臺灣社會工作專業人員協會(2011)。社會工作研究倫理守則。檢自:https://www.tasw.org.tw/tw/news/79
潘淑滿(2003)。質性研究的典範。質性研究理論與應用(第三章,頁31-58)。臺北市:心理出版社。
潘淑滿(2003)。質性研究的信度與效度。質性研究理論與應用(第五章,頁79-102)。臺北市:心理出版社。
潘淑滿(2003)。深度訪談法。質性研究理論與應用(第七章,頁133-157)。臺北市:心理出版社。
潘淑滿(2003)。深度訪談法。質性研究理論與應用(第十六章,頁367-382)。臺北市:心理出版社。
鄭惠心、侯建州、林鴻玲(2019)。護理之家社會工作人員專業角色之初探。社會發展研究學刊,23,36-67。doi:10.6687/JSDS.201903_(23).0002
蔡宗益、李荔方、林廷光、蕭依祐(2019)。簡述臺灣長期照護現況與挑戰。臺灣老誌,14(1),44-50。
劉俐君(2018)。長期照護機構提供安寧緩和因應分析(未出版之碩士論文)。檢自台灣博碩士論文系統。國立中山大學,高雄市。
劉淑娟(2011)。緒論。長期照護(二版) (第一章,頁1-43)。臺北市:華杏。
劉依薰、黃淑鶴(2017)。施行安寧緩和照顧協助機構長者在機構善終之實務經驗–以台中市某私立養護機構執行現況為例。安寧療護雜誌,22(3),310–324。
劉家勇(2020)。老人社會工作與老人臨終及安寧療護。老人社會工作—長期照顧實務應用(第十三章,頁307-323)。臺北市:華都文化。
劉家勇(2020)。老人社會工作支機構服務。老人社會工作—長期照顧實務應用(第十章,頁237-256)。臺北市:華都文化。
衛生福利部國民健康署(2010)。安寧療護–尊重生命。檢自:https://www.hpa.gov.tw/Pages/Detail.aspx?nodeid=1130&pid=2123
衛生福利部中央健康保險署(2011)。全民健康保險安寧共同照護試辦方案。檢自:https://www.nhi.gov.tw/Content_List.aspx?n=57EF6EC5BCAB7609&topn=5F8C9FEAE863B46&upn=4CE4DCEE47BD6425
衛生福利部中央健康保險署(2022年3月1日)。安寧居家支付標準。檢自:https://www.nhi.gov.tw/Content_List.aspx?n=BC4B6B42238D5D7A&topn=5FE8C9FEA863B46&upn=67346AA1878962F7
衛福利部(2015年12月23日)。建構整合性安寧緩和醫療照護體系,推廣到醫院及社區。2015年衛生福利部新聞。檢自:https://www.mohw.gov.tw/cp-2651-19688-1.html
衛生福利部(2016年12月19日)。長期照顧十年計畫2.0(106~115年)(核定本)。檢自:https://1966.gov.tw/LTC/cp-4001-42414-201.html
衛生福利部統計處(2022)。2.3.1身心障者人數按類別及縣市別分。檢自:https://dep.mohw.gov.tw/dos/cp-5224-62359-113.html
衛生福利部統計處(2022)。2.4.7老人長期照護、安養機構概況。檢自:https://dep.mohw.gov.tw/dos/cp-5223-62358-113.html
衛生福利部統計處(2021)。109年醫事機構服務量統計年報。檢自:https://dep.mohw.gov.tw/DOS/lp-5099-113.html
衛生福利部(2021)。109年國人死因統計結果。檢自:
https://www.mohw.gov.tw/cp-5017-61533-1.html
衛生福利部國民健康署(2019)。安寧療護。檢自:https://www.hpa.gov.tw/Pages/List.aspx?nodeid=210
陳品翰(2019)。護理之家提供緩和醫療及臨終照護措施的現況與困境-以嘉義縣市為例(未出版之碩士論文)。國立中正大學,嘉義縣。
陳晶瑩(2003)。老年人之長期照護,老年醫學,7(3),404-412。
陳美花、嚴嘉楓(2005)。長期照顧中社會工作者的角色,台灣老人保健學刊,1(1),41-49。
陳燕禎(2015)。長期照顧的壓力與調適。老人福利服務:理論與實務本土的觀點(二版)(第十一章,頁337-362)。臺北市:雙葉書廊。
陳鈱渼、周春珍、許桂英、顏永豐、楊雅婷、黃秀梨(2017)。長期照護機構提供緩和照護之護理經驗–讓在地善終成為可行的事實。護理雜誌,64(2),130-135。
龍紀萱、李依臻(2018)。護理之家實施安寧療護服務措施之研究。台灣衛誌,137(6),638-650。
賴允亮(2010)。面對絕症的醫學-安寧緩和醫療。醫療品質雜誌,4(5),13-16。doi:10.30160/JHQ.201009.0003
謝秀芬(2016)。社會個案工作理論與技巧(四版)。台北:雙葉書廊
謝穎(2018)。由機構管理者觀點探討長照機構生命末期照護(未出版之碩士論文)。國立陽明大學,臺北市。
蕭詠心(釋蓮梵)(2019)。以佛法關懷運用於長照機構住民生活品質與生命轉化之探究(未出版之碩士論文)。法鼓文理學院,新北市。
二、西文資料
Aldridge, D. (1995). Spirituality, hope and music therapy in palliative care. The Arts in Psychotherapy, 22(2), 103-109. doi: 10.1.1.551.2643&rep=rep1&type=pdf
Alcorn, S.R., Balboni, M.J., Prigerson, H.G., Reynolds, A., Phelps, A.C., Wright, A.A., …Balboni, T.A.(2010). "If God wanted me yesterday, I wouldn't be here tody": Religious and spiritual themes in patients' experiences of advanced cancer. Jounal of Palliative Medicine, 13(5), 581–588. doi:10.1089/jpm.2009.0343
Arnold, E., Finucane, A. M., & Oxenham, D. (2015). Preferred place of death for patients referred to a specialist palliative care service. BMJ Supportive & Palliative Care, 5(3), 294–296. doi:10.1136/bmjspcare-2012-000338
Appleby, A., Wilson, P., & Swinton, J. (2018). Spiritual care in general practice: Rushing in or fearing to tread? An integrative review of qualitative literature. Journal of Religion and Health, 57(3), 1108–1124. doi:10.1007/s10943-018-0581-7
Agllias, K. (2018). A snapshot of Australian social workers in palliative care and their work with estranged clients. Social Work in Health Care, 57(8), 620-636.
Balboni, T.A., & Balboni, M.J.(2018). The spiritual event of serious illness. Journal of Pain & Symptom Management, 56(5), 816–822. doi:10.1016/j.jpainsymman.2018.05.018
Bes, M., Butow, P., & Olver, I.(2015). Do patients want doctors to talk about spirituality? A systematic literature review. Patient Education and Counseling, 98(1), 1320–1328. doi:10.1016/j.pec.2015.04.017
Blacker, S., Head, B. A., Jones, B. L., Remke, S. S., & Supiano, K. (2016). Advancing hospice and palliative care social work leadership in interprofessional education and practice. Journal of social work in end-of-life & palliative care, 12(4), 316–330. https://doi.org/10.1080/15524256.2016.1247771
Callahan, A. M. (2009). Spiritually-sensitive care in hospice social work. Journal of social work in end-of-life & palliative care, 5(3-4), 169-185. doi:10.1080/15524250903555098
Carron, R., & Cumbie, S. A. (2011). Development of a conceptual nursing model for the implementation of spiritual care in adult primary healthcare settings by nurse practitioners. Journal of the American Academy of Nurse Practitioners, 23(10), 552-560.
Clyne, B., O'Neill, S.M., Nuzum, D., O'Neill, M., Larkin, J., Ryan, M., & Smith, S.M.(2019). Patients' spirituality perspectives at the end of life: A qualitative evidence synthesis. BMJ Supportive & Palliative Care. doi:10.1136/bmjspcare-2019-002016
Drageset, J., Haugan, G., & Tranvåg, O. (2017). Crucial aspects promoting meaning and purpose in life: Perceptions of nursing home residents. BMC Geriatrics, 17(1), 1-9.
Erichsen, N. B., & Büssing, A. (2013). Spiritual needs of elderly living in residential/nursing homes. Evidence-based Complementary and Alternative Medicine: Ecam, 2013.doi:10.1155/2013/913247
Erlingsson, C., & Brysiewicz, P. (2013). Orientation among multiple truths: An introduction to qualitative research. African Journal of Emergency Medicine, 3(2), 92-99. doi:10.1016/j.afjem.2012.04.005
Evangelista, C.B., Lopes, M.E., Costa, S.F., Batista, P.S., Batista, J.B., & Oliveira, A.M. (2016). Palliative care and spirituality: An integrative literature review. Revista Brasileira de Enfermagem, 69(3), 591–601. doi:10.1590/0034-7167.2016690324i
Evans, S., & Devlin, G. (2016). Client-led spiritual interventions: Faith-integrated professionalism in the context of a Christian faith-based organization. Australian Social Work, 69(3), 360-372.
Friedemann, M. L., Mouch, J., & Racey, T. (2002). Nursing the spirit: The framework of systemic organization. Journal of Advanced Nursing, 39(4), 325-332.
Farrugia, L. (2019). WASP (write a scientific paper): The ongoing process of ethical decision-making in qualitative research: Ethical principles and their application to the research process. Early Human Development, 133, 48-51. doi:10.1016/j.earlhumdev.2019.03.011
Francoeur, R. B., Burke, N., & Wilson, A. M. (2016). The role of social workers in spiritual care to facilitate coping with chronic illness and self-determination in advance care planning. Social Work in Public Health, 31(5), 453–466. doi:10.1080/19371918.2016.1146199
Gijsberts, M. J. H., van der Steen, J. T., Muller, M. T., Hertogh, C. M., & Deliens, L. (2013). Spiritual end-of-life care in Dutch nursing homes: An ethnographic study. Journal of the American Medical Directors Association, 14(9), 679-684.
Gijsberts, M., Liefbroer, A. I., Otten, R., & Olsman, E. (2019). Spiritual care in palliative care: A systematic review of the recent European literature. Medical Sciences (Basel, Switzerland), 7(2), 25. doi:10.3390/medsci7020025
Haugan, G. (2014). Nurse–patient interaction is a resource for hope, meaning in life and self‐transcendence in nursing home patients. Scandinavian Journal of Caring Sciences, 28(1), 74-88
HealthCare Chaplaincy Network™ & The Spiritual Care Association (2018). Spiritual care and social work: Integration into practice. Retrieved from https://healthcarechaplaincy.org/spiritual-care-and-social-work
Holloway, M., Adamson, S., McSherry, W., & Swinto, J.(2010). Spiritual care at the end of life: A systematic review of the literature. Retrieved from https://www.gov.uk/government/publications/spiritual-care-at-the-end-of-life-a-systematic-review-of-the-literature
Holmes C.(2018). Stakeholder views on the role of spiritual care in Australian hospitals: An exploratory study. Health Policy (Amsterdam, Netherlands),122(4), 389–395. doi:10.1016/j.healthpol.2018.02.00
Holyoke, P., & Stephenson, B. (2017). Organization-level principles and practices to support spiritual care at the end of life: A qualitative study. BMC Palliative Care, 16(1), 1-19. doi:10.1186/s12904-017-0197-9
Jaul E., Zabari, Y., & Brodsky, J.(2014). Spiritual background and its association with the medical decision of, DNR at terminal life stages. Archives of Gerontology and Geriatrics, 58(1), 25–29. doi:10.1016/j.archger.2013.08.004
Karakas, F. (2010). Spirituality and performance in organizations: a literature review. Journal of Business Ethics, 94(1), 89-106.
Kang, K-A. (2018). Models for spiritual care in hospice and palliative care. The Korean Journal of Hospice and Palliative Care, 21(2), 41–50. doi:10.14475/kjhpc.2018.21.2.41
Kang, K-A., & Choi, Y(2020). Comparison of the Spiritual Needs of terminal cancer patients and their primary family caregivers. Korean Journal of Hospice & Palliative Care, 23(2), 55-70. doi:10.14475/kjhpc.2020.23.2.55
Klinger, C. A., Howell, D., Marshall, D., Zakus, D., Brazil, K., & Deber, R. B. (2013). Resource utilization and cost analyses of home-based palliative care service provision: The niagara west end-of-life shared-care project. Palliative Medicine, 27(2), 115-122. doi:10.1177/02 69216311433475
Kim, C. J. (2019). Challenges and opportunities in clinical ethics with the implementation of korean’s end-of-life act. Acta Bioéthica, 25(2), 177–186. doi:10.4067/s1726-569x2019000200177
Kim, E. (2019). Perceptions of good and bad death among Korean social workers in elderly long-term care facilities. Death studies, 43(5), 343-350.
Leclerc, B. S., Lessard, S., Bechennec, C., Le Gal, E., Benoit, S., & Bellerose, L. (2014). Attitudes toward death, dying, end-of-life palliative care, and interdisciplinary practice in long term care workers. Journal of the American Medical Directors Association, 15(3), 207–213. doi:10.1016/j.jamda.2013.11.017
Lin, H. Y., Kang, S. C., Chen, Y. C., Chang, Y. C., Wang, W. S., & Lo, S. S. (2017). Place of death for hospice-cared terminal patients with cancer: A nationwide retrospective study in Taiwan. Journal of the Chinese Medical Association : JCMA, 80(4), 227–232. doi:10.1016/j.jcma.2016.10.009
Lai, X. B., Chen, L. Q., Chen, S. H., & Xia, H. O. (2019). An examination of home based end-of-life care for cancer patients: a qualitative study. BMC Palliative Care, 18(1), 115. doi:10.1186/s12904-019-0501-y
Lewis Hall, M. E., & Hill, P. (2019). Meaning-making, suffering, and religion: A worldview conception. Mental Health, Religion & Culture, 22(5), 467-479.doi:10.1080/13674676.2019.1625037
McSherry W. (2006). The principal components model: A model for advancing spirituality and spiritual care within nursing and health care practice. Journal of Clinical Nursing, 15(7), 905–917. doi:10.1111/j.1365-2702.2006.01648.x
Mark, G., & Lyons, A.(2014). Conceptualizing mind, body, spirit interconnections through, and beyond, spiritual healing practices. Explore, 10(5), 294–299. doi:10.1016/j.explore.2014.06.003
McGrath, A. E. (2011). Christian theology: An introduction (5th edition). United Kingdom, Chichester: John Wiley and Sons Ltd.
McDonald, R. (2018). Hospice care in USA. Indian Journal of Gerontology, 32(2), 186–193.
McGinley, J. M., & Waldrop, D. P. (2020). Navigating the transition from advanced illness to bereavement: how provider communication informs family-related roles and needs. Journal of Social Work in End-of-Life & Palliative Care, 16(2), 175-198.
Moon, F., & McDermott, F. (2021). Social work end-of-life care interventions for patients and their families in hospital. Australian Social Work, 74(3), 276-293.
Murphy, D., Duggan, M., & Joseph, S. (2013). Relationship-based social work and its compatibility with the person-centred approach: Principled versus instrumental perspectives. The British Journal of Social Work, 43(4), 703-719. doi:10.1093/bjsw/bcs003
National association of social workers. (2003). NASW standards for social work services in long-term care facilities. Retrieved from https://www.socialworkers.org/LinkClick.aspx?fileticket=cwW7lzBfYxg%3d&porta lid=0
National Consensus Project for Quality Palliative Care (2018). Clinical practice guidelines for quality palliative care.(4th ed.). Retrieved from https://www.nationalcoalitionhpc.org/ncp/
Nelson-Becker, H., Ai, A., Hopp, F., Mccormick, T.R., Schlueter, J.O., & Cam-p, J. (2015). Spirituality and religion in end-of-life care ethics: The challenge of interfaith and cross-generational matters. British Journal of Social Work, 45, 104-119.
Oxhandler, H. K., Parrish, D. E., Torres, L. R., & Achenbaum, W. A. (2015). The integration of clients' religion and spirituality in social work practice: A national survey. Social work, 60(3), 228–237. doi:10.1093/sw/swv018
O'Callaghan, C., Brooker, J., de Silva, W., Glenister, D., Melia Cert, A., 4th, Symons, X., …Michael, N.(2019). Patients' and caregivers' contested perspectives on spiritual care for those affected by advanced illnesses: A qualitative descriptive study. Journal of Pain and Symptom Management, 58(6), 977–988. doi:10.1016/j.jpainsymman.2019.08.004
Payne, M. (2014). Modern social work theory, 4th Edition. Basingstoke, England: Palgrave.
Payne, S. A., Froggatt, K., Hockley, J., Sowerby, E., Collingridge Moore, D., Kylänen, M., ... & Van den Block, L. (2019). PACE steps to success programme steps towards achieving high quality palliative care in your care home. Retrieved from https://endoflifecare.research.vub.be/pace-steps-to-success
Petty, N. J., Thomson, O. P., & Stew, G. (2012). Ready for a paradigm shift? Part 2: Introducing qualitative research methodologies and methods. Manual Therapy, 17(5), 378-384. doi:10.1016/j.math.2012.03.004
Pandya S. P. (2016). Hospital social work and spirituality: Views of medical social workers. Social Work in Public Health, 31(7), 700–710. doi:10.1080/19371918.2016.1188740
Pelon, S. B. (2017). Compassion fatigue and compassion satisfaction in hospice social work. Journal of Social Work in End-of-Life & Palliative Care, 13(2-3), 134-150.
Puchalski, C. M. (2002). Spirituality and end-of-life care: a time for listening and caring. Journal of Palliative Medicine, 5(2), 289-294. doi: 10.1089/109662102753641287
Puchalski, C.M., Sbrana, A., Ferrell, B., Jafari, N., King, S., Balboni, T., …Ripamonti, C.I.(2019). Interprofessional spiritual care in oncology: A literature review. ESMO Open, 4(1), e000465. doi:10.1136/esmoopen-2018-000465
Puchalski, C. M., Vitillo, R., Hull, S. K., & Reller, N. (2014). Improving the spiritual dimension of whole person care: reaching national and international consensus. Journal of Palliative Medicine, 17(6), 642–656. doi:10.1089/jpm.2014.9427
Ruch, G., Wilson, K., Lymbery, M., & Cooper, A. (2008). Social work: An introduction to contemporary practice. Longman: Pearson.
Ross, L. A. (1994). Spiritual aspects of nursing. Journal of Advanced Nursing, 19(3), 439-447. doi: 10.1111/j.1365-2648.1994.tb01105.x
Rogers, M., & Wattis, J. (2015). Spirituality in nursing practice. Nursing Standard, 29(39), 51-57.doi:10.7748/ns.29.39.51.e9726
Rijnaard, M. D., Van Hoof, J., Janssen, B. M., Verbeek, H., Pocornie, W., Eijkelenboom, A., ... & Wouters, E. J. M. (2016). The factors influencing the sense of home in nursing homes: a systematic review from the perspective of residents. Journal of Aging Research, 2016. doi: 10.1155/2016/6143645
Robinson, M. C., Qureshi, M., Sinnarajah, A., Chary, S., de Groot, J. M., & Feldstain, A. (2021). Missing in action: reports of interdisciplinary integration in canadian palliative care. Current Oncology, 28(4), 2699–2707. https://doi.org/10.3390/curroncol28040235
Selman, L., Young, T., Vermandere, M., Stirling, I., & Leget, C. (2014). Research priorities in spiritual care: An international survey of palliative care researchers and clinicians. Journal of Pain and Symptom Management, 48(4), 518-531. doi:10.1016/j.jpainsymman.2013.10.020
Saarelainen, S.M. (2017). Emerging finnish adults coping with cancer: Religious, spiritual, and secular meanings of the experience. Pastoral Psychology,66(2),251-268. doi:10.1007/s11089-016-0735-z
Selman, L. E., Brighton, L. J., Sinclair, S., Karvinen, I., Egan, R., Speck, P.,…Hope, J. (2018). Patients' and caregivers' needs, experiences, preferences and research priorities in spiritual care: A focus group study across nine countries. Palliative Medicine, 32(1), 216–230. doi:10.1177/0269216317734954
Seifert, A., & Schelling, H. R. (2018). Attitudes toward aging and retirement homes before and after entry into a retirement home. Journal of Housing for the Elderly, 32(1), 12-25. doi:10.1080/02763893.2017.1393484
Sadat Hoseini, A. S., Razaghi, N., Khosro Panah, A. H., & Dehghan Nayeri, N. (2019). A concept analysis of spiritual health. Journal of Religion and Health, 58(4), 1025–1046. doi:10.1007/s10943-017-0522-x
Saison, Russell & White(2021). A guide to nursing homes. Retrieved from https://www.helpguide.org/articles/senior-housing/a-guide-to-nursing-homes.htm
Terry, G., Hayfield, N., Clarke, V., & Braun, V. (2017). Thematic analysis. The Sage handbook of qualitative research in psychology, 17-37. doi:10.4135/9 781526405555.n2
Teggi, D.(2020). Care homes as hospices for the prevalent form of dying: An analysis of long-term care provision towards the end of life in England. Social Science & Medicine, 260, 113150. doi:10.1016/j.socscimed.2020.113150
Tyler, D.A., Shield, R.R., & Miller, S. C. (2015). Diffusion of palliative care in nursing homes: lessons from the culture change movement. Journal of Pain and Symptom Management, 49(5), 846-852. doi:10.1016/j.jpainsymman.2014.10.005
Vincensi B. B. (2019). Interconnections: Spirituality, spiritual care, and patient- centered care. Asia-Pacific Journal of Oncology Nursing, 6(2), 104–110. doi:10.4103/apjon.apjon_48_18
Wattis, J., Curran, S., & Rogers, M. (2017). What does spirituality mean for patients, practitioners and health care organisations? Spiritually competent practice in health care (chap.1, pp.1-17). United Kingdom, Raton: CRC Press, Taylor & Francis Group.
Wallace, M., & O'Shea, E. (2007). Perceptions of spirituality and spiritual care among older nursing home residents at the end of life. Holistic Nursing Practice, 21(6), 285–291. doi:10.1097/01.HNP.0000298611.02352.46
Washington, K.T., Khosla, N., & Lero, C.(2019). U.S. providers’ perceptions of the psychosocial needs of seriously Ill Patients of South Asian Origin: Implications for health social work. Health & Social Work, 44(3), 177–184. doi:10.1093/hsw/hlz015
Wiersma, E., & Dupuis, S. L. (2010). Becoming institutional bodies: Socialization into a long-term care home. Journal of Aging Studies, 24(4), 278-291. doi:10.1016/j.jaging.2010.08.003
Winkelman, W.D., Lauderdale, K., Balboni, M.J., Phelps, A.C., Peteet, J.R., Block, S.D., …Balboni, T.A.(2011). The relationship of spiritual concerns to the quality of life of advanced cancer patients: preliminary findings. Journal of Palliative Medicine, 14(9), 1022–1028. doi:10.1089/jpm.2010.0536
Walker, A., & Breitsameter, C. (2017). The provision of spiritual care in hospices: A study in four hospices in North Rhine-Westphalia. Journal of Religion and Health, 56(6), 2237–2250. doi:10.1007/s10943-017-0396-y
Wattis, J., Rogers, M., Ali, G., & Curran, S. (2019). Bringing spirituality and wisdom into practice. In Practice Wisdom (pp. 155-168). Brill.
Yates, P. (1993). Towards a reconceptualization of hope for patients with a diagnosis of cancer. Journal of Advanced Nursing, 18(5), 701-706. doi:10.1046/j.1365-2648.1993.18050701.x
Yoon, S.J., Suh, S.Y., Kim, S.H., Park, J., Kim, Y.J., Kang, B., …Hui, D.(2018). Spiritual well-being among palliative care patients with different religious affiliations: A multicenter Korean study. Journal of Pain and Symptom Management, 56(6), 893–901. doi:10.1016/j.jpainsymman.2018.09.001
Ødbehr, L. S., Kvigne, K., Hauge, S., & Danbolt, L. J. (2015). Spiritual care to persons with dementia in nursing homes; a qualitative study of nurses and care workers experiences. BMC Nursing, 14(1), 1-9.